The Post Exposure Foundation

A place to learn

A place to make an actionable plan

A place where you are believed and heard

Our Mission

Our mission is to ensure that no sufferer of any post exposure syndrome goes unrecognized and unheard

We do this by organizing evidence, gathering data, providing resources, providing advocacy services, and most importantly– making noise.

Our goal is to empower patients in order to push establishment medicine to catch up with the reality patients are already living.

What We Do

  • The official PSSD/PFS/PAS database.

    It's easy to underestimate the power for data. At PEF, we're building a detailed database of interventions for post-exposure syndromes – to be released publicly on Kaggle for open analysis. That way, it not only increases awareness but also allows for groundbreaking insights to be found. Its precision– not only if something works, but for who.

    Interested in participating? Click here

  • Many living with post-exposure disorders are too symptomatic to advocate for themselves — or too exhausted from years of dismissal by conventional medicine. You shouldn't have to keep fighting alone to be believed.

    That's where we come in. We reach out to medical professionals on your behalf, so you don't have to.

    Coming soon.

  • We offer comprehensive guides for each condition we serve — written for patients, not physicians. Each guide covers:

    • How to recognize and contextualize your symptoms

    • How to collect and interpret your own clinical data

    • How to present your case to medical professionals in a way that maximizes your chances of being taken seriously and accessing treatment

    Coming soon.

  • A centralized library built for patients navigating post-exposure conditions.

    Includes peer-reviewed research, curated articles, anecdotal recovery reports from real patients, and a directory of physicians and clinics with experience treating these conditions — all in one place

    Our database includes

    • International clinics, physicians and hospitals that work with post exposure syndromes (PES)

    • Clinical trials, and research papers

    • Anecdotal reports of recovery

    • A unified list of PES resources, platforms, and forums

  • We give you the tools and guidance to share your story, whether in writing or on video, anonymously or by name — the choice is yours. We'll publish it on our platform and amplify it across social media, increasing the chances that the right people hear it: researchers, clinicians, and policymakers who can actually make a difference.

    Share your story here

Learn More About The Conditions We Serve

Four small white cards with black lowercase letters spelling 'p', 's', 's', 'd' on a wooden surface against a white background.
Post SSRI Disorder (PSSD)
Three letter blocks spelling 'p', 'f', 's' on a wooden surface.
Post Finasteride Syndrome (PFS)
The word 'Pass' spelled out with letter tiles on a wooden surface.
Post Accutane Syndrome (PAS)
Close-up of a wooden surface with a small paper or sticker showing part of the letter 'I' and a partial 'C' on it.
Long Covid
Wooden surface with a paper spelling out the word 'pandas' in individual letter tiles.
Adult PANS/PANDAS

Don’t See Your Condition Listed? Contact us for information!

Wooden surface with four paper blocks spelling 'prms' on top.
Post Ashwaganda/Lions Mane Syndrome
Four Scrabble tiles spelling 'h p p d' on a wooden surface.
Hallucinogen persisting perception disorder (HPPD)
Three paper blocks with the letters P, V, and C on a wooden surface.
Post Vaccine Complications
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Dual Diagnoses & Medical Odysseys

Be Heard

Share your story today

Be part of the evidence

Share your story — anonymously or by name, the choice is entirely yours. We'll amplify it across our platform and social media channels, increasing the odds that the right people hear it: the researchers, clinicians, and advocates working to make these conditions impossible to ignore.